Overview
These days as many of my family and friends know, amongst other health issues, the hardest one I have to deal with is the lack of memory.
So whilst I can I have been writing notes over the last 20 years, and I think now is the time to put them altogether in some sort of order.
At times I have had to ask for help for some parts of my memory has forgotten, or people have just sent me messages with bits I do not remember, so this page will be updated as I get them.
Every now and then something happens, I am TALKING to FAMILY or a FRIEND - AND I get the urge to write down certain things about my life.
Often I find that I have no memory, or as I found out, speaking to a long time friend (BJ) on messenger the other night and some comments made just caused a crack in the vacuum of emptiness of my mind that I live with today, and a snippet will escape. (One of the main reasons I started this website!)
It will be all over the place, I just do not know how it will work, but I am sure if Lynne, family n friends see this they may be able to help me sort it out into some sort of order if there is one!
Where as I thought I had been abandoned by most of my friends, I found out with a chat on Sat night, That it turns out people do not know "what to say"
for me it's easy - Just say it to me, as I probably do not remember!
I may go quiet for a bit, But I will always reply. Often it just takes a while for me to process things and it's far better than feeling those you thought were friends have abandoned you just when you need there few words the most.
So Lets see how things pan out, in no order as that's not how it works anymore....
Back in 2017 I was diagnosed with Parkinson's, which we promptly hid from everyone. Rick Hulse did see the shakes, at NABD national whilst I was Djing, but apart from a glance nothing was said.
I just carried on and then COVID hit us, which now I know destroyed my health totally. And what people see and here today is from that. We believe if COVID did not happen, then I would still be the person that everyone knows. But with my health slowly getting worse over time.
On the other hand if COVID did not happen, I would not have had a chance to see a specialist, when I was rushed into Peterboro Hospital back in November 2021.
and after 20 odd years of being told what was wrong with me, within 10 mins of looking at me, a simple test on my left eye with some water, we would not have found out what is actually wrong with me!!! I will have to have a chat with Lynne as I have forgotten the name and symptoms, all I can vaguely remember it has mutlipul symptoms, that fitted with everything that was wrong with me.
The Parkinson's Diagnosis we are not sure whats happening as many of the symptoms I have are the same as early parkinson's..................
So with the other health issues I have, we now have a fighting chance of hopefully holding back or at least delaying the process for a while.